Effective December 16, 2013
This “Site” may contain links to third-party websites / content / services that are not owned or controlled by the Juvenile Idiopathic Arthritis Research Study Study. The Juvenile Idiopathic Arthritis Research Study are not responsible for how these properties operate or treat your personal information so we recommend that you read the privacy policies and terms associated with these third party properties carefully.
At this time, we do not store any information on this site. We collect your zip code for finding locations near you but the zip code is stored only for the temporary session and is not kept.
In addition, we may gather information about you automatically through your use of the Site, e.g., your IP address and how you navigate the Site. See also, the Section below on Cookies and Other Tools.
We may use your personal information in the following ways:
To Serve You: For example, on the location page, if you enter your zip code we provide you with a list of locations that you may contact for more information about the Study. See also the Cookies and Other Tools Section below.
To Validate Your Ability to Access / Use Certain Products, Services and Information: Some products, services and information we offer may only be suitable for/ accessible to individuals meeting certain eligibility or other criteria. In such cases, we may verify the location information you have provided.
In Accordance with Special Program Terms: On occasion, the “Site” may offer special programs, activities, clinical trials, events or promotions via the Site (“Special Programs”) that have specific terms, privacy notices and/or informed consent forms that explain how any personal information you provide will be processed in connection with the Special Program (“Special Program Terms”). The “Site” will honor those Special Program Terms with respect to your personal information. Some of these Special Programs may involve sharing information with a third party and the “Site” will provide you with notice of this. You may be offered the opportunity to agree to or opt-out of the sharing of your information with such third party. But, in some instances, it may be necessary to agree to sharing with a third party in order to participate in a particular Special Program. If you consent/do not opt-out, we will share your information with the third party; and the personal information you provide may be used by the third party in accordance with the Special Program Terms and, unless provided otherwise in such Special Program Terms, for their own purposes in accordance with their own policies/terms. We strongly suggest you review both the Special Program Terms and any applicable third party policies/ terms before participating.
The “Site” may share your personal information as follows:
Clinical Trial Sponsor: We may share your information with the study sponsor so that they may contact you for further screening to participate in a clinical trial.
With Service Providers and Business Partners: We may retain other companies and individuals to perform services on our behalf and we may collaborate with other companies and individuals with respect to particular products or services (collectively, “Providers”). Examples of Providers include data analysis firms, credit card processing companies, customer service and support providers, email and SMS vendors, web hosting and development companies and fulfillment companies. Providers may also include co-promoting partners for products that we jointly develop and/or market with other companies. Some Providers may collect information on our behalf on this Site. These third parties may be provided with access to personal information needed to perform their functions, but they may not use such information other than on our behalf and subject to contracts that protect the confidentiality of the information. In addition, as noted above, we may share information with third parties in accordance with Special Program Terms unless you opt-out/do not consent.
To Comply with Law/Protect: We reserve the right to disclose your personal information as required by law, when we believe disclosure is necessary to comply with a regulatory requirement, judicial proceeding, court order, or legal process served on us, or to protect the safety, rights, or property of our customers, the public or the “Site”.
In the Aggregate/De-Identified: The “Site” may also disclose aggregate or de-identified data that is not personally identifiable with third parties. Aggregate data is created by pooling information about individuals and describing the data in the aggregate, e.g., 20% of customers who clicked on the X promotion participated in the promotion.
The “Site” and its business partners collect information about you by using cookies, tracking pixels and other technologies (collectively, “Tools”). We use this information to better understand, customize and improve user experience with these websites, services and offerings as well as to manage the advertising. For example, we use web analytics services that leverage these Tools to help us to understand how visitors engage with and navigate the Site, e.g., how and when pages in a site are visited and by how many visitors. We are also able to offer the visitors a more customized, relevant experience on these sites using these Tools by delivering content and functionality based on your preferences and interests. If you have provided us with personal information, e.g., through a registration or a request for certain materials, we may associate this personal information with information gathered through the Tools. This allows us to offer increased personalization and functionality.
Your web browser can be set to allow you to control whether you will accept cookies, reject cookies, or to notify you each time a cookie is sent to your browser. If your browser is set to reject cookies, websites that are cookie-enabled will not recognize you when you return to the website, and some website functionality may be lost. The Help section of your browser may tell you how to prevent your browser from accepting cookies. To find out more about cookies, visit www.aboutcookies.org.
We use technical, administrative and procedural measures in an attempt to safeguard your personal and other information from unauthorized access or use. No such measure is ever 100% effective though, so we do not guarantee that your personal and other information will be secure from theft, loss, or unauthorized access or use, and we make no representation as to the reasonableness, efficacy, or appropriateness of the measures we use to safeguard such information. If you have reason to believe that your interaction with us is no longer secure (for example, if you feel that the security of any account you might have with us has been compromised), please immediately notify us by contacting us at email@example.com.
You may always update your personal information and your preferences. Limited communications may be necessary in order for you to participate in a particular program or service. Different programs and services may offer different phone numbers, links or preference managers that allow you to inform us of your updates and choices, including opting out of particular communications. These contact options are typically available on Sites such as this but you may always contact the Privacy Officer for assistance at firstname.lastname@example.org to update your information or preferences.
Please contact us if you have any questions or concerns about your personal information or require assistance in managing your choices.